Why You Don't Want To Go Off Your Meds > Bipolar's...

I have been following the story of the flight attendant who went off her bipolar meds. http://www.leadertelegram.com/news/daily_updates/article_873dc40b-1f48-5d73-a406-5eb21f51b9f9.html. I worry that her actions may have potentially caused post-traumatic stress in passengers some if who may have been afraid to get on an airplane in the first place…I feel for these people.

As you know I too have bipolar disorder. Unfortunately it took my doctors till I was 28 to get this diagnosis confirmed. Incidents of psychosis for me started at 20 years of age. At that time I was diagnosed with borderline personality disorder. This was accurate at the time but the docs failed to realize that I was not coping because of bipolar and PTSD and other anxiety disorders. I think most people have attempted to get off their meds. We have a love hate relationship with this things right? I have tried, once, in an attempt to get manic. I am depressed mostly on my meds the only think it does is keep me from getting loopy. I wanted the happy part of mania. So, I took a friends antidepressant. Instead I ended up in the ER, brilliant right? That was the only time I tried that, lol. I did not hurt anyone. I just had a racing heart it scared me. I was living in a group home.

I have talked to multiple people who have stopped bipolar meds because they feel ‘fine’ or ‘better’. But does it ever occur to people that they feel better because of the meds? If someone with bipolar disorder wants to be weaned of their meds they talk to their doctor who will do so s-l-o-w-l-y and safely…

I worry this story makes people with bipolar disorder look like demons. That’s what I thought when I heard the scream on the video. I use to think I had a demon in my head to when I was 14. I didn’t want to say anything because I felt that mental illness was a weakness and I know some people still feel this way. Stresses often set off an episode or psychosis. We are more sensitive perhaps but on our meds we fit right into society and its genetic, its not our fault we have this...some of us are highly intelligent and able to work...I can't see this lady ever being in the air as a profession again but it will be interesting to see...

I definitely want to get to the underlying issue of why I am ‘this’ way. I am aware of the signs that I might be getting sick from my bipolar particularly the upswing/psychosis: I don't sleep, I am fidgety, can't sit still, can't stop talking, talking to myself, feeling I am one with 'God,' hearing things, feeling high and other stuff. You probably get the idea > loopy. How could the staff have missed this on the pre-flight?

Luckily I have an anti-psychotic Zyprexa that I can take as an extra med if I feel the 'signs'. This is the med the doctors always gave me in the ER when I would go when I was manic/psychotic so its great I don’t have to worry about going in again and I love it! I haven't been to the ER for any med related issue in 5 years.

I really hope this flight attendant is OK.

People its just really important to take your meds if you need them. Don’t ruin your life. Live the live you are given. Its really ok to have a mental illness but you have to take care of yourself as do we all…

What do you think?

When Numbness Isn't A Choice

I was chatting with my mental health worker Jenn yesterday about how I feel numb all the time and that this had been going on as long as I can remember. Jenn said it is normal because I have had trauma starting at birth. So this numbness is not really a choice. It's like being on a really scary roller-coaster where your hands are so tight on the bar you can't unclench them without it hurting. The last thing you want is to hurt. I can function. This numbness helps me feel safe. But it’s also frustrating because sometimes I want to ‘wake-up’ and I feel I need to hide out of fear of panic attacks and anxiety I guess.

‘Hiding’ for me has been quite common these last couple of years. As I think back to what I did to get so agoraphobic for instance, I think of how a few years back I was doing yoga daily and practicing stills to self soothe on a regular basis. It was pretty ritualized and obsessive-like unfortunately. My goal was to cure myself of mental illness, to be ‘normal’ and go far in life. This plan hasn’t panned out, yet.

I ended up stopping all the ritualized self-care rather abruptly because I started having panic attacks during my at home yoga DVD sessions. I was even having attacks during bubble baths. As I think back I wonder if maybe I ‘should’ have pushed through and embraced this shift as stuff coming out the way it was supposed to. Maybe this would have been a way of empowering me and helping my self-confidence eventually. Or maybe I needed to stop and go inside myself a bit.

I have been having vivid dreams in the last few weeks. These dreams are of having grand mal seizures over and over again or having committed a violent act and having the cops after me. I have woken up after dreams of hearing screaming then fearing I am going to end up in the loony bin! It’s been eight years since I’ve been in-patient and I really want to keep it that way!  When I told Jenn about the dreams she told me it was the Bowen therapy, the body work I have been doing. That’s what I had been thinking.

I have missed the last two weeks of Bowen because two weeks ago my Bowen Practitioner Casey had the flu and then I had a really bad cold this week…But we will get back on track. I am also wondering if my 3 colds since February are Bowen’s doing since I had successfully outwitted (very proud too grinning from ear to ear) my mom’s flu and cold and my step-dad’s two colds between November and January. Yet when starting Bowen I have been sick most of the time since. Maybe I jinxed myself through my overconfidence, LOL…we all need to be humbled sometimes, no?

It was at this time and with my Homeopath Terrance that things were shifting inside of my mind. I had lost the rage I had carried with me all of my life. Unfortunately now I didn’t feel like doing anything except watching television and staying around the house.  Terrance seemed to think this was just a normal state of the process that would pass but here I am 2 ½ years later and I’m still sitting at home, nesting. The cats love it though…

I’ll start again, slowly, to try to figure out what I can do that is doable. I have started a second twitter paper on paper li. Called “Learning Self-Love Daily.” Here is the link: http://paper.li/remedyke/1330539184.  There are tons of articles on the subject. I choose the search settings but don’t write the articles. I love this topic because so many people who are excellent at taking care of others are not as good at taking care of their own mind/body (myself included, of course)….but it’s a process. I fell off the wagon but I can get back on again. It won’t be quick. I still hold a lot of fear in my body/mind but I will figure out a workable goal in time…

Christmas Is A Sad Time Too...But Things Get Better...

Christmas is especially hard for me this year because I am not living with Kerri, my ex/bff who I lived with for the last 2 years and really miss. She lives in BC now. We will talk on the phone as we do everyday and those chats make me laugh and smile every time. Kerri is sad as well to be away from friends and family here so hopefully we will both be able to make the best of it. Kerri got in the Christmas spirit long ago and had her Christmas tree up at the end of November.

I feel that I’m stronger in a way this year. I don’t feel depressed but rather sad. I know the shrink I used to have used to try to get me to distinguish between depressed and sad. Sometimes it feels like they are both the same emotion.

I have big hopes that by next Christmas I will be attending numerous holiday parties and some are non alcoholic so that is a plus for me. I have bought a bus pass for January and I am really excited to at least vicariously go out and enjoy life. The thing I most want to do is go back to my mental health drop-in for their drop-in support groups. I want to meet people where I can chat and feel safe and secure because for people with post traumatic stress disorder it is hard to feel safe in the world.

As it is holiday time and more people are celebrating I find it really hard to read people’s tweets on drinking. I want to drink too! I have upset one or two people, I think, who I have been chatting with and then I later stop following them  because I feel jealousy and anger because I so don’t want to feel the anxiety and pain that life causes me so it really is not about them. 

I have been sober almost 6 ½ years because drugs and alcohol took over my life for 5 years. In the end I had a heart arrhythmia and elevated liver enzymes and probably a death wish. A year after I quit the docs said my heart and liver were functioning normally and I am so glad that I caught it soon enough for my body to heal. I do believe my life  IS getting better!

For the past year or more I have been telling everyone I want to live to be over 100. They just look at me funny, hehe. But I want to heal and then have the rest of my life to be amazing! Anywhoo I do feel hopeful because I will be starting a new therapy called ‘Bowen Therapy’ in February. This is suppose to help with body alignment for physical and mental ills and it is similar to the Feldenkrais Method which I tried a few years ago and I found it to be extremely helpful. During tough times it is OK to dream. Whatever it takes to help your body and spirit get stronger right? 

 Anywhoo, here is a cute video for all cat lovers on Oskar the blind kitten. He is very 'helpful' and here he is trying to help with the Christmas tree :-P.

I wish you all a wonderful Christmas or whatever you are celebrating this season. Remember if you are sad that things do get better as I believe they will for me and it's OK to dream, smile and laugh :-).

The Painful Struggle Of Addiction And Where I'm At...

Amy Winehouse died 2 days ago and I have been reading everything I can to find out why. There is not much. It is assumed to be drugs since the autopsy has not found anything. Now we will have to wait 4-6 weeks for the the toxicology reports.  I don’t know much about Amy but what I have been learning is that was a troubled addict and I can identify with her struggle as I am an addict who has been sober 6 years.  I was never into her music. I can’t relate to the celebrity part which I know is a huge part but here are some of my thoughts on addiction:

Addiction changes your brain. You are numb inside or at least these are my thoughts here from my druggy days…I didn’t get why people were so worried about me. People stopped their lives and came to help me wondering if I was going to die or when. I tried not to talk about all this after I came too, or survived that high or attempt on my life. The boundaries were not even clear. I was so impulsive. I didn’t want to think. I had thrown the coping skills I did have out the window and just focused on the now. I didn’t think of the future. I was just existing…I needed to survive. I needed to block out my depression, anxiety, flashbacks of abuse, sadness of my dads death, and memories of my operations from my hydrocephalus. It was a painful realization that the goals I had set up to do ie complete University; have a great job; house, 2 kids; husband (I was so lost I didn’t yet realize I was a lesbian nor did I want to deal with that yet) were not going to happen due to my existing mental problems coupled with a learning disability….so much in my head.  

The other day I was on twitter and a site came up of a singer, Tori Amos. I love  music but it had been awhile since I played her songs. This song 'Winter' made me think of Amy Winehouse for probably no reason idk...anyways I got hooked on this song and I didn't even know what it was talking about (I listed to the tune not so much the words - gets me in trouble sometimes, lol).

   

Looking on the web it seems to be about Tori remembering a happy event from her childhood, playing and her father’s unconditional love.  I have been imagining myself as a 4 year old and pretending to interact with ‘little me.’ This is something my team of professionals have been coaching me on. I look at 'little me' through my eyes and remember that I do not wish pain on myself as this child. I even notice I try never to swear because I’m a mom now to myself, lol…

In my interactions with my cats Speckle and now Bob I treat them as if they are perfect and I want only happiness and to love them.

Anyway, about the addiction piece I am so happy that I am here on this earth still even though its so not easy for me yet. Now I can perhaps shed light onto this deadly problem and the deep denial within the addict/alcoholics that keeps them lying and keeps them using.

There is really nothing you can do for a person who does not stay clean or get help. Sometimes you have to way the pros and cons ie. Do you really need this person in your life or are you going to start letting go of them and taking care of YOU!

I'm Guessing I Have A.D.D - Heck What's One More Label? LOL.

I'm not sure why staff Katie at my volunteer job likes me to call in sick still.  I have been calling in sick for most of the past 2 1/2 months and she knows I'm on sabbatical :-P!  But I think its nice and also a good motivator to get well.  She knows what's going on for me and seems very caring about the whole thing.  She is a really caring person to everyone it seems.  Sweet....

I did try to do some self-care today which has become a rarity except for ingesting herbal stuff (but I did that too - not what you are thinking but...).  I first started just at the computer while browsing Twitter profiles and Facebook groups.  I started breathing out rapidly.  This breathing is called breath of fire.  I learned this in yoga.  It does feel good and wakes you up a bit, lol.  Then I was reading on my Yoga forum on Facebook  this one person was having anxiety and yoga was not enough so people were suggesting meditation.  So I did 10 minutes of a sitting meditation. 

After the 10 minutes were up I felt such endorphins from the concentration and constant deep breathing.  It was sweet.  I wanted to meditate all day, lol, but then I also want to do a million other things and it's good to start at mediation bit by bit, or so I heard...

I have been hearing from different people that I may have A.D.D (attention deficit disorder) so I have started telling people that I may have it.  I know in grade school ever since I was 6 I was told I had a learning disability.  They called it a visual tracking problem.  In university the learning specialist explained my problem for the first time.  She said that when I am reading I unconsciously space out and miss things.  I even do that on this blog while proof reading.  It's really embarrassing!  Thing is though I don't only space out while reading.  I do it all the time.  So I think its A.D.D.  I have joined a Facebook group for A.D.D and they are telling my story, so, ya know.

I was thinking about being retested a few years back but it's $1500 for the test and since there is some much else going on for me that could be causing this problem i.e. the lithium has made it worse, my ptsd, my general anxiety is usually quite high and I am even have had possible head injury from birth because of my hydrocephalus and the lack of treatment I got for it in the beginning.   I have been tested for head injury but this was years ago and they didn't have all the testing faculties that they now do.  So, I will have to just diagnose myself.  Okie dokie????

I was proud of myself today because I drove!!!  Well, I drove down our small dead end street that is, lol.  I got a good idea of how driving on pure snow feels like.   I have driven on pure snow before.  It's a bit slippy, yep!  I try to avoid snowy days and then usually the main roads clear up soon after a snow fall.

I am taking care of my car though.  I clear the snow off of it and let it run everyday or every other day.  It's like one of my children :-P.  I can't drive any further at the moment until my anxiety calms down because if i left our quiet dead-end street there is a country road where the cars boot along at 60 km an hour!  NOOOOO thanks :-D.  Well someday but but sloooowly....